In My Daughters Eyes

In My Daughters Eyes

Look at her being a Big Girl!

Well It's been a while since I've posted a blog. Carly is doing great. Still on the high flow nasal canula. They tried to wean it to 4 liters the other day but she didn't like it too much. So she's still at 5 liters. I've been doing kangaroo care and loving every minute of it. Oh yeah and this may be hard to believe seeing as how she's only 39 weeks adjusted (almost 3 months actual age) but it's true....she's lifting her head!!!!!! Can you believe it! I was so shocked! And EVERYTIME I do kangaroo care she lifts it! She's such a big girl. She's always doing something new to amaze me! She's getting more beautiful everyday. And it seems like she's looking more and more like my little brother everyday. Especially when she is wide awake. Today was a big day for Carly because they tried to give her her first bottle. Now you are wondering how she did! Well to answer your question, no she didn't! She dosen't know how to suck nor does she get the concept to swallow so I was suprised to hear the Dr say we were goning to try her on a bottle today. But we did as he ordered. We put the nipple in her mouth and she cut her eyes back at me with the little attitude that she has with a look like, what the heck are you doing to me and please get this thing out of my mouth! We tried putting a drop of milk on her toung then we tried a drop of sugar water on her tounge and still nothing! I've been trying for a while with a paci but she hasn't taken to it yet. They told me to start putting a drop of sugar water on it before offering it to her so I'll start doing that tomorrow. They are also going to see about getting speech therapy in to help her with sucking and swallowing. She started physical therapy and occupational therapy and they will be teaching me things to do with her later this week. They are going to show me how to do infant massages to help relax her tightened muscles and exersices to help loosen her joints. I'm not quite sure what OT will be doing seeing as how I haven't met with her yet. But I should be meeting with her at the end of the week. The developmental lady took me on a tour of the NPCN (Neonatal Progressive Care Nursery) today. She's hoping that Carly will be there in less than a month! It so nice over there. They each have there own room/pod that is realy spacious and privite. But the bad thing is that she would have all new nurses! I like it over there it's brand new and really nice and super quite. But it's NOT the NORTH NURSERY! I don't want Carly to move away! I love her nurses and her nurses love her. Hopefuly we can talk her doctor into letting the NICU discharging her when the time comes! Well this is all I have for today. I'll post more later. Thank you to everyon who continues to keep Carly and our family in your thoughts and prayers! (((((((HUGS)))))))) to everyone!

Look at her being a Big Girl!

Well It's been a while since I've posted a blog. Carly is doing great. Still on the high flow nasal canula. They tried to wean it to 4 liters the other day but she didn't like it too much. So she's still at 5 liters. I've been doing kangaroo care and loving every minute of it. Oh yeah and this may be hard to believe seeing as how she's only 39 weeks adjusted (almost 3 months actual age) but it's true....she's lifting her head!!!!!! Can you believe it! I was so shocked! And EVERYTIME I do kangaroo care she lifts it! She's such a big girl. She's always doing something new to amaze me! She's getting more beautiful everyday. And it seems like she's looking more and more like my little brother everyday. Especially when she is wide awake. Today was a big day for Carly because they tried to give her her first bottle. Now you are wondering how she did! Well to answer your question, no she didn't! She dosen't know how to suck nor does she get the concept to swallow so I was suprised to hear the Dr say we were goning to try her on a bottle today. But we did as he ordered. We put the nipple in her mouth and she cut her eyes back at me with the little attitude that she has with a look like, what the heck are you doing to me and please get this thing out of my mouth! We tried putting a drop of milk on her toung then we tried a drop of sugar water on her tounge and still nothing! I've been trying for a while with a paci but she hasn't taken to it yet. They told me to start putting a drop of sugar water on it before offering it to her so I'll start doing that tomorrow. They are also going to see about getting speech therapy in to help her with sucking and swallowing. She started physical therapy and occupational therapy and they will be teaching me things to do with her later this week. They are going to show me how to do infant massages to help relax her tightened muscles and exersices to help loosen her joints. I'm not quite sure what OT will be doing seeing as how I haven't met with her yet. But I should be meeting with her at the end of the week. The developmental lady took me on a tour of the NPCN (Neonatal Progressive Care Nursery) today. She's hoping that Carly will be there in less than a month! It so nice over there. They each have there own room/pod that is realy spacious and privite. But the bad thing is that she would have all new nurses! I like it over there it's brand new and really nice and super quite. But it's NOT the NORTH NURSERY! I don't want Carly to move away! I love her nurses and her nurses love her. Hopefuly we can talk her doctor into letting the NICU discharging her when the time comes! Well this is all I have for today. I'll post more later. Thank you to everyon who continues to keep Carly and our family in your thoughts and prayers! (((((((HUGS)))))))) to everyone!

Throw Away That CPAP!

Go Carly Go! I'm so proud of her! She went to the high flow nasal canula today! She has done so good with it! I got to look at her whole face. She was or should I say is SOOOOO cute! I just want to pick her up and squeeze her! I'm so full of excitement right now I can't even put it into words. She has come so far! I mean from being born at only 13 ounces to being on the High Frequency Oscillator Ventilator for 2 weeks then to the conventional vent back to the HFOV back to the conventional vent for a total of nine weeks, 10 blood transfusions, 2 infections in the blood stream, chronic lung disease and RDS, osteopenia of prematurity among many other things. And here we are now at 2 pounds 6 ounces breathing on her own with the help of a high flow nasal canula! GOD IS GOOD!! I give him all the praise and glory!

Throw Away That CPAP!

Go Carly Go! I'm so proud of her! She went to the high flow nasal canula today! She has done so good with it! I got to look at her whole face. She was or should I say is SOOOOO cute! I just want to pick her up and squeeze her! I'm so full of excitement right now I can't even put it into words. She has come so far! I mean from being born at only 13 ounces to being on the High Frequency Oscillator Ventilator for 2 weeks then to the conventional vent back to the HFOV back to the conventional vent for a total of nine weeks, 10 blood transfusions, 2 infections in the blood stream, chronic lung disease and RDS, osteopenia of prematurity among many other things. And here we are now at 2 pounds 6 ounces breathing on her own with the help of a high flow nasal canula! GOD IS GOOD!! I give him all the praise and glory!

Moving Right Along!

Well to start with Carly was put on Bubble CPAP yesterday at 10:45 am. She did and is doing remarkably well! He oxygen settings have been lurking around 35-45%. So 36 hours later she's still being a big girl breathing on her own. Praise God! I got to hold her tonight. This was the first time I've held her since Christmas. I was so glad but yet nervous because the CPAP nasal canulas have to stay in her nose just right. I was so afraid that I would knock them loose. But she did good and I didn't break anything! :) I was able to position her on my own while holding her which was a first. Seeing as how I didn't have to contend with the vent and it's cords and being afraid of extubating it was easy moving her. She got VERY hot while I was holding her. Her heart rate shot up and we checked her temp and it was 100.7!!!! I unwraped her and left her in just her diaper trying to help her cool off. I also (** I know this is gonna sound weird**) got to smell her breath for the first time tonight! I know what your thinking, it's weird and silly. But for me it was nice. Even though she had stinky breath it was nice to be able to smell it. It's something most people take for granted. So every little thing matters to me.....even smelling stinky breath! Well I can't think of much more. But Carly is doing extreamly well. She has however stopped gaining weight. She is actually loosing some grams here and there. But this is because she is using all of her energy breathing on her own. They say it happens. So the have increased her calories to see if this will help her start gaining weight again. Well that's all for now. I'll post another updare soon! Nite Nite!

Here are pictures of her on CPAP