Saturday, March 8, 2008
Carly's Back in the NICU
Dr. Chu and she said Carly got a little worse through the night. She's still at 5L but now up to 100% on her oxygen. They sent her back to the NICU. She also said if she continues to get worse with her oxygen needs that it's VERY possible she may need to be ventilated again. They are still waiting on the blood cultures to come back and she ordered an x-ray of her heart. She's thinks she may be getting the high pressures back in her heart. Poor girl's been through enough. Please just keep her in your thoughs and prayers. I'm gonna get ready now and head up there. I'll post an update as I get it.
Carly's Back in the NICU
Dr. Chu and she said Carly got a little worse through the night. She's still at 5L but now up to 100% on her oxygen. They sent her back to the NICU. She also said if she continues to get worse with her oxygen needs that it's VERY possible she may need to be ventilated again. They are still waiting on the blood cultures to come back and she ordered an x-ray of her heart. She's thinks she may be getting the high pressures back in her heart. Poor girl's been through enough. Please just keep her in your thoughs and prayers. I'm gonna get ready now and head up there. I'll post an update as I get it.
Friday, March 7, 2008
3/7/08 Still feeling bad.....
Well Carly is still not feeling well today. She's starting to look very pale and they had to increase her flow again to 4 liters and now she's up to 70% on her oxygen with her O2 sats hanging around low to mid 80's. I got her out to hold her during her 12 o'clock feeding and she was so limp and almost lifeless. Poor girl really feels bad. You can tell she doesn't feel good by looking at her face. I had Dr. Fisher paged over. And he is kinda at a stand still right now with her. Not really what I wanted to hear but o'well. He says that there is no sure sign that she's sick (runny nose, fever, BC w/diff was good, chest film was good, blood gas "OK") but if she continues to require more oxygen throughout the day he will do futher testing to see if there is an underlying infection that they are missing. I don't know exactly what they would do to find out. I just hope they can figure it out soon. I hate seeing her not feeling well. I'll post another update as soon as I get it.
3/7/08 Still feeling bad.....
Well Carly is still not feeling well today. She's starting to look very pale and they had to increase her flow again to 4 liters and now she's up to 70% on her oxygen with her O2 sats hanging around low to mid 80's. I got her out to hold her during her 12 o'clock feeding and she was so limp and almost lifeless. Poor girl really feels bad. You can tell she doesn't feel good by looking at her face. I had Dr. Fisher paged over. And he is kinda at a stand still right now with her. Not really what I wanted to hear but o'well. He says that there is no sure sign that she's sick (runny nose, fever, BC w/diff was good, chest film was good, blood gas "OK") but if she continues to require more oxygen throughout the day he will do futher testing to see if there is an underlying infection that they are missing. I don't know exactly what they would do to find out. I just hope they can figure it out soon. I hate seeing her not feeling well. I'll post another update as soon as I get it.
Thursday, March 6, 2008
A little Set Back and Update...................
Well first off let me say that Carly was weaned the other day to 1 liter on her oxygen after being on 2 liters for only 3 days (super fast wean) she seemed to be doing fair and the next day after being weaned to 1L she had an eye exam to follow up from her ROP surgery. This dang eye exam set her back! She went from 1L back to 3L and still on high oxygen needs (50-60%) her norm is 28-40%. Her heart rate has been hitting so close to 200 (174-195) and her resperations have been all the way up to 101. She's just not herself. I thought she was getting sick. So they ran a CBC with diff, chest x-ray, blood gas, and something else but I can't remember what it was. Everything came back good thank God. But her gas wasn't as good as it should be but they said they will accept what it is for now. I was sitting with her all day yesterday and today. She just looks so pitiful. I didn't wanna hold her and get her anymore stressed out so I just let her lay in her isolette. I was sitting there this evening after about 5 hours and decided that I couldn't look at her anymore. It just hurt me to see her look so uncomfortable. If I looked at her anymore I would started crying and not been able to stop.
Now today we had a team meeting with her Dr., NNP, EI coordinator, ST, OT, and PT. So they didn't tell me too much that I didn't already know. But we did discuss her neurological disorder and what it holds for her stay, her coming home and her future. As far as her brain defect we are still not sure as to why this is what it is. But the Dr does think it has A LOT to do with the fact that she dosen't have the suck swallow breath reflex. Or even a suck reflex in itself or the need or desire to swallow her own sectetions. She refuses to sleep on her back and Dr fisher thinks it has to do with her secretions filling up in the back of her throat and her not knowing how to swallow then and it obstructs her airway so she starts desating. They are pretty sure if the suck and swallow reflex dosen't show it's face in the next 2-3 weeks they will be setting up a time for surgery to place a g-tube. And they said that she WILL have to have both herneias fixed before going home. There was a lot more info given to me but I can't remember it all right now. Oh yeah they said when they do the g-tube they would also probably do another procedure to keep her from refluxing her food to keep her from asperating seeing as how she has NO gag reflex. But he didn't say what the name of that procedure was called. So as most of you already know they again told me, she probably not be coming home before 2 months. So she'll be 6 months old before making that trip out the front doors of the hospital. Today makes 16 weeks (112days).
Now today we had a team meeting with her Dr., NNP, EI coordinator, ST, OT, and PT. So they didn't tell me too much that I didn't already know. But we did discuss her neurological disorder and what it holds for her stay, her coming home and her future. As far as her brain defect we are still not sure as to why this is what it is. But the Dr does think it has A LOT to do with the fact that she dosen't have the suck swallow breath reflex. Or even a suck reflex in itself or the need or desire to swallow her own sectetions. She refuses to sleep on her back and Dr fisher thinks it has to do with her secretions filling up in the back of her throat and her not knowing how to swallow then and it obstructs her airway so she starts desating. They are pretty sure if the suck and swallow reflex dosen't show it's face in the next 2-3 weeks they will be setting up a time for surgery to place a g-tube. And they said that she WILL have to have both herneias fixed before going home. There was a lot more info given to me but I can't remember it all right now. Oh yeah they said when they do the g-tube they would also probably do another procedure to keep her from refluxing her food to keep her from asperating seeing as how she has NO gag reflex. But he didn't say what the name of that procedure was called. So as most of you already know they again told me, she probably not be coming home before 2 months. So she'll be 6 months old before making that trip out the front doors of the hospital. Today makes 16 weeks (112days).
A little Set Back and Update...................
Well first off let me say that Carly was weaned the other day to 1 liter on her oxygen after being on 2 liters for only 3 days (super fast wean) she seemed to be doing fair and the next day after being weaned to 1L she had an eye exam to follow up from her ROP surgery. This dang eye exam set her back! She went from 1L back to 3L and still on high oxygen needs (50-60%) her norm is 28-40%. Her heart rate has been hitting so close to 200 (174-195) and her resperations have been all the way up to 101. She's just not herself. I thought she was getting sick. So they ran a CBC with diff, chest x-ray, blood gas, and something else but I can't remember what it was. Everything came back good thank God. But her gas wasn't as good as it should be but they said they will accept what it is for now. I was sitting with her all day yesterday and today. She just looks so pitiful. I didn't wanna hold her and get her anymore stressed out so I just let her lay in her isolette. I was sitting there this evening after about 5 hours and decided that I couldn't look at her anymore. It just hurt me to see her look so uncomfortable. If I looked at her anymore I would started crying and not been able to stop.
Now today we had a team meeting with her Dr., NNP, EI coordinator, ST, OT, and PT. So they didn't tell me too much that I didn't already know. But we did discuss her neurological disorder and what it holds for her stay, her coming home and her future. As far as her brain defect we are still not sure as to why this is what it is. But the Dr does think it has A LOT to do with the fact that she dosen't have the suck swallow breath reflex. Or even a suck reflex in itself or the need or desire to swallow her own sectetions. She refuses to sleep on her back and Dr fisher thinks it has to do with her secretions filling up in the back of her throat and her not knowing how to swallow then and it obstructs her airway so she starts desating. They are pretty sure if the suck and swallow reflex dosen't show it's face in the next 2-3 weeks they will be setting up a time for surgery to place a g-tube. And they said that she WILL have to have both herneias fixed before going home. There was a lot more info given to me but I can't remember it all right now. Oh yeah they said when they do the g-tube they would also probably do another procedure to keep her from refluxing her food to keep her from asperating seeing as how she has NO gag reflex. But he didn't say what the name of that procedure was called. So as most of you already know they again told me, she probably not be coming home before 2 months. So she'll be 6 months old before making that trip out the front doors of the hospital. Today makes 16 weeks (112days).
Now today we had a team meeting with her Dr., NNP, EI coordinator, ST, OT, and PT. So they didn't tell me too much that I didn't already know. But we did discuss her neurological disorder and what it holds for her stay, her coming home and her future. As far as her brain defect we are still not sure as to why this is what it is. But the Dr does think it has A LOT to do with the fact that she dosen't have the suck swallow breath reflex. Or even a suck reflex in itself or the need or desire to swallow her own sectetions. She refuses to sleep on her back and Dr fisher thinks it has to do with her secretions filling up in the back of her throat and her not knowing how to swallow then and it obstructs her airway so she starts desating. They are pretty sure if the suck and swallow reflex dosen't show it's face in the next 2-3 weeks they will be setting up a time for surgery to place a g-tube. And they said that she WILL have to have both herneias fixed before going home. There was a lot more info given to me but I can't remember it all right now. Oh yeah they said when they do the g-tube they would also probably do another procedure to keep her from refluxing her food to keep her from asperating seeing as how she has NO gag reflex. But he didn't say what the name of that procedure was called. So as most of you already know they again told me, she probably not be coming home before 2 months. So she'll be 6 months old before making that trip out the front doors of the hospital. Today makes 16 weeks (112days).
Friday, February 22, 2008
Pictures!!!!!!
Uncle Josh holding Carly for the first time (2/13/08)
Amaw holding baby girl for the 1st time (2/13/08)
Carly getting physical therapy (2/20/08)
daddy feeding Carly (gravity feeding)
kissy kissy outfit!!!
PawPaw Morton holding Carly
Right after ROP surgery
2 months old compared to a 20oz coke bottle
Kangaroo Care 2 months 9 days old
Amaw holding baby girl for the 1st time (2/13/08)
Carly getting physical therapy (2/20/08)
daddy feeding Carly (gravity feeding)
kissy kissy outfit!!!
PawPaw Morton holding Carly
Right after ROP surgery
2 months old compared to a 20oz coke bottle
Kangaroo Care 2 months 9 days old
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