Surgery Tomorrow Morning!!! (2/5/08)
Well in my last blog I posted about the eye doctor finding some ROP in Carly's eyes. Well they did another eye exam today and her eye disease has progressed VERY quickly. She now has plus disease in the right eye and pre-plus disease in her left eye. They will be taking her down for surgery at 6:30 tomorrow morning. The surgery should last from 2-3 hours. After they are done she'll return back to the nicu for recovery. They will have to put her back on the ventilator and hopefully she'll come off without a problem. They doctor said she may not want to let go of it though seeing as how she held on to it for so long before. So I'm praying that she adjust well. They will give her a big dose of steriods just before the procedure though to help assist her and speed up the pace of coming off the vent. She's still have a lot of bradycardia episodes lately down to the 40's and lasting anywhere from 5-30 seconds. I spoke to the physical therapist today and she says the reason Carly is behind developmentaly ( sucking, poor muscle tone, etc) "COULD" be because of the missing corpus callosum in her brain. We knew about this while she was still in utero. She says she may be behind a little developmentaly or severely but only time will tell. And that's okay with me. I love her anyway God gives her to me! It may just be a little challenging to adapt to when she comes home with all the specialist that they'll be calling in.
Oh yeah I ment to say that without the surgery Carly has a 60% or greater chance of blindness and with the surgery it reduces to a 10-20% chance. She will however lose most or all of her peripheral vision with the surgery. But the doctor said that she souldn't notice a difference ever seeing as how she'll learn to turn her head to compensate.
Friday, February 15, 2008
Surgery
Surgery Tomorrow Morning!!! (2/5/08)
Well in my last blog I posted about the eye doctor finding some ROP in Carly's eyes. Well they did another eye exam today and her eye disease has progressed VERY quickly. She now has plus disease in the right eye and pre-plus disease in her left eye. They will be taking her down for surgery at 6:30 tomorrow morning. The surgery should last from 2-3 hours. After they are done she'll return back to the nicu for recovery. They will have to put her back on the ventilator and hopefully she'll come off without a problem. They doctor said she may not want to let go of it though seeing as how she held on to it for so long before. So I'm praying that she adjust well. They will give her a big dose of steriods just before the procedure though to help assist her and speed up the pace of coming off the vent. She's still have a lot of bradycardia episodes lately down to the 40's and lasting anywhere from 5-30 seconds. I spoke to the physical therapist today and she says the reason Carly is behind developmentaly ( sucking, poor muscle tone, etc) "COULD" be because of the missing corpus callosum in her brain. We knew about this while she was still in utero. She says she may be behind a little developmentaly or severely but only time will tell. And that's okay with me. I love her anyway God gives her to me! It may just be a little challenging to adapt to when she comes home with all the specialist that they'll be calling in.
Oh yeah I ment to say that without the surgery Carly has a 60% or greater chance of blindness and with the surgery it reduces to a 10-20% chance. She will however lose most or all of her peripheral vision with the surgery. But the doctor said that she souldn't notice a difference ever seeing as how she'll learn to turn her head to compensate.
Well in my last blog I posted about the eye doctor finding some ROP in Carly's eyes. Well they did another eye exam today and her eye disease has progressed VERY quickly. She now has plus disease in the right eye and pre-plus disease in her left eye. They will be taking her down for surgery at 6:30 tomorrow morning. The surgery should last from 2-3 hours. After they are done she'll return back to the nicu for recovery. They will have to put her back on the ventilator and hopefully she'll come off without a problem. They doctor said she may not want to let go of it though seeing as how she held on to it for so long before. So I'm praying that she adjust well. They will give her a big dose of steriods just before the procedure though to help assist her and speed up the pace of coming off the vent. She's still have a lot of bradycardia episodes lately down to the 40's and lasting anywhere from 5-30 seconds. I spoke to the physical therapist today and she says the reason Carly is behind developmentaly ( sucking, poor muscle tone, etc) "COULD" be because of the missing corpus callosum in her brain. We knew about this while she was still in utero. She says she may be behind a little developmentaly or severely but only time will tell. And that's okay with me. I love her anyway God gives her to me! It may just be a little challenging to adapt to when she comes home with all the specialist that they'll be calling in.
Oh yeah I ment to say that without the surgery Carly has a 60% or greater chance of blindness and with the surgery it reduces to a 10-20% chance. She will however lose most or all of her peripheral vision with the surgery. But the doctor said that she souldn't notice a difference ever seeing as how she'll learn to turn her head to compensate.
Tuesday, February 12, 2008
ROP......and update
I got a phone call today from the nurse that assist the eye doctor today. They have found that Carly has stage1 ROP. They will now monitor her more closely. She will have eye exams every3-4 days as opossed to every week to 10 days. This is some thing very common in premature and very underweight babies. If it gets worse there is a laser surgery avalible to help but not correct it.
She's starting to cry OUT LOUD!!!! Well sorta. They are whimpers but more frequent! It's so dern cute. When she gets going though she uses up all of her energy and starts desating.
The big day is tomorrow.....her due date!!!!! She will then be considered term! She's doing great though. She should weigh at least 1250 grams (2 pounds 12 ounces) tonight, she was 1224 last night. This means as soon as she hits 1250 grams she gets to come off skin control temp and onto air contral. This means she can wear clothes all day no questions asked!!!! I'll be posting pics hopefully tonight of her in her first preemie onesies! Even though they are still big it's really all I have to fit her. I have a shirt to fit but only one. So she'll be wearing onesies that are too big for a while.
Her ortho doctor came by and said her leg is completly healed!!! He was concerned about her hips though and he thinks they are okay he was afraid that they weren't resting in the sockets. But he's pretty sure that they are. He wrote an order for me to take her to the Ortho clinic a week after she's discharged to be seen again. She might end up having braces to correct her legs later down the road.
She's still not sucking or swallowing but I've been massaging her gums and stroking her tounge to try and stimulate her. She does seem to bite down very breifly when I rub the very back of her bottom gums so I hope that it's improvement! Fingers crossed!!!
That's it.....just working on weaning oxygen, feeding and growing now!!! Hopefully it won't be TOO long now!
She's starting to cry OUT LOUD!!!! Well sorta. They are whimpers but more frequent! It's so dern cute. When she gets going though she uses up all of her energy and starts desating.
The big day is tomorrow.....her due date!!!!! She will then be considered term! She's doing great though. She should weigh at least 1250 grams (2 pounds 12 ounces) tonight, she was 1224 last night. This means as soon as she hits 1250 grams she gets to come off skin control temp and onto air contral. This means she can wear clothes all day no questions asked!!!! I'll be posting pics hopefully tonight of her in her first preemie onesies! Even though they are still big it's really all I have to fit her. I have a shirt to fit but only one. So she'll be wearing onesies that are too big for a while.
Her ortho doctor came by and said her leg is completly healed!!! He was concerned about her hips though and he thinks they are okay he was afraid that they weren't resting in the sockets. But he's pretty sure that they are. He wrote an order for me to take her to the Ortho clinic a week after she's discharged to be seen again. She might end up having braces to correct her legs later down the road.
She's still not sucking or swallowing but I've been massaging her gums and stroking her tounge to try and stimulate her. She does seem to bite down very breifly when I rub the very back of her bottom gums so I hope that it's improvement! Fingers crossed!!!
That's it.....just working on weaning oxygen, feeding and growing now!!! Hopefully it won't be TOO long now!
ROP......and update
I got a phone call today from the nurse that assist the eye doctor today. They have found that Carly has stage1 ROP. They will now monitor her more closely. She will have eye exams every3-4 days as opossed to every week to 10 days. This is some thing very common in premature and very underweight babies. If it gets worse there is a laser surgery avalible to help but not correct it.
She's starting to cry OUT LOUD!!!! Well sorta. They are whimpers but more frequent! It's so dern cute. When she gets going though she uses up all of her energy and starts desating.
The big day is tomorrow.....her due date!!!!! She will then be considered term! She's doing great though. She should weigh at least 1250 grams (2 pounds 12 ounces) tonight, she was 1224 last night. This means as soon as she hits 1250 grams she gets to come off skin control temp and onto air contral. This means she can wear clothes all day no questions asked!!!! I'll be posting pics hopefully tonight of her in her first preemie onesies! Even though they are still big it's really all I have to fit her. I have a shirt to fit but only one. So she'll be wearing onesies that are too big for a while.
Her ortho doctor came by and said her leg is completly healed!!! He was concerned about her hips though and he thinks they are okay he was afraid that they weren't resting in the sockets. But he's pretty sure that they are. He wrote an order for me to take her to the Ortho clinic a week after she's discharged to be seen again. She might end up having braces to correct her legs later down the road.
She's still not sucking or swallowing but I've been massaging her gums and stroking her tounge to try and stimulate her. She does seem to bite down very breifly when I rub the very back of her bottom gums so I hope that it's improvement! Fingers crossed!!!
That's it.....just working on weaning oxygen, feeding and growing now!!! Hopefully it won't be TOO long now!
She's starting to cry OUT LOUD!!!! Well sorta. They are whimpers but more frequent! It's so dern cute. When she gets going though she uses up all of her energy and starts desating.
The big day is tomorrow.....her due date!!!!! She will then be considered term! She's doing great though. She should weigh at least 1250 grams (2 pounds 12 ounces) tonight, she was 1224 last night. This means as soon as she hits 1250 grams she gets to come off skin control temp and onto air contral. This means she can wear clothes all day no questions asked!!!! I'll be posting pics hopefully tonight of her in her first preemie onesies! Even though they are still big it's really all I have to fit her. I have a shirt to fit but only one. So she'll be wearing onesies that are too big for a while.
Her ortho doctor came by and said her leg is completly healed!!! He was concerned about her hips though and he thinks they are okay he was afraid that they weren't resting in the sockets. But he's pretty sure that they are. He wrote an order for me to take her to the Ortho clinic a week after she's discharged to be seen again. She might end up having braces to correct her legs later down the road.
She's still not sucking or swallowing but I've been massaging her gums and stroking her tounge to try and stimulate her. She does seem to bite down very breifly when I rub the very back of her bottom gums so I hope that it's improvement! Fingers crossed!!!
That's it.....just working on weaning oxygen, feeding and growing now!!! Hopefully it won't be TOO long now!
Sunday, February 3, 2008
Wednesday, January 30, 2008
Subscribe to:
Comments (Atom)